Reference 2018-440

REF:           2018-440

Subject:       Services for Foetal Alcohol Spectrum Disorders

 

Request:

1) Copies of any policies that the Trust has on the prevention of FASD, and on the diagnosis and post-diagnostic care pathway for patients with an FASD. Also your policy on the training of Trust personnel to manage patients with FASD.

2) Any information you hold on services your Trust provided for FASD for:

  1. prevention education following the 2016 Chief Medical Officers’ guidelines that the safest course is not to drink while pregnant or attempting to become pregnant;
  2. diagnosis for both children and adults;
  3. post-diagnostic care in the financial years beginning 2013, 2014, 2015, 2016, 2017 and 2018.

3) Information on the number of Doctors in your Trust who currently provide diagnostic and/or post-diagnostic services for FASD? Please provide their names and posts. Whether your Trust employs specifically trained professionals, including but not limited to nurses, psychologists, occupational therapists and speech and language therapists, to provide specialised services for patients on the FASD spectrum? If so, in what specialties, and how many? Please provide their names and posts.

4) Information on training provided to personnel in your Trust on FASD, or provided by others and accessed by your personnel.

5) Information you hold on whether your Trust sends patients for FASD diagnosis to the National FASD Clinic in Surrey (https://www.fasdclinic.com/)? Did your refer any patients to the National FASD Clinic in 2013, 2014, 2015, 2016 and 2017, and in 2018, and if so, how many in each year?

6) What was your budget for services for FASD in each financial year since that starting in 2013 and including the current financial year?

7) Please provide copies of any agreed plans you have to expand the budget or services in coming years.

 

 

Response:

The NNU does not diagnose, or counsel on post diagnostic acre. Prevention education is outside of the neonatal remit and would be provided by antenatal service.

 

On occasion the NNU will admit a NAS (Neonatal Abstinence syndrome infant) which may be withdrawing. The infant would be admitted, observed and a Rivers scoring chart completed 4 hourly, except when scores are indicating more frequent monitoring. The scoring chart consists of symptoms most commonly observed in opiate exposed infants. Each symptom and its degree of severity are assigned a score and the total score is then calculated – following which recommendations are made on the level of intervention i.e. the need for pharmacotherapy.