Reference 2018-614

REF:           2018-614

Subject:       MND service structure & provision

 

Request:

1. What is your NHS organisation’s catchment population?

2. Does your organisation provide healthcare services for people diagnosed with MND?

3. If no, where do patients with MND in your catchment population access healthcare services? If your organisation does not provide healthcare services for people diagnosed with MND, please go to question 15.

4. If yes, what is your NHS organisation’s catchment population for MND services (if different to Q1)?

5. How many newly diagnosed patients with MND were referred to the organisation in each of the last three years?

  • 2017
  • 2016
  • 2015

6. What is the total number of patients with MND that are currently receiving healthcare from your organisation?

7. Is your organisation a specialist care centre for MND?

8. In your organisation, where do patients with MND access services e.g. hospital inpatient services, hospital outpatient services, community clinics, domiciliary visits?

9. In your organisation, are patients with MND seen in specialist clinics?

10. If yes,

  • Where are the MND specialist clinics in your organisation held?
  • How often are the MND specialist clinics in your organisation held?
  • How often are patients routinely reviewed in the MND specialist clinics? 

 

MND healthcare team

 

11. Who leads the MND services in your organisation (job title)?

12. In your organisation, which jobs (f.t.e) are specifically funded to provide healthcare for people with MND, e.g. MND clinical lead, MND specialist nurse, MND specialist dietitian?

13. Is there a multidisciplinary team (MDT) that provides care to patients with MND in your organisation?

14. If yes, which professional roles are members of the MDT?

 

MND Dietetic Services

 

15. In your organisation how many full time equivalent dietetic posts do you have?

16. Do you have dietetic posts that are specifically funded for MND services ?

17. If yes,

  • How many full time equivalent posts do you have?
  • What grade are they?

18. If no, which dietitians see patients with MND? Please list all posts including their job title and grade.

19. In your organisation,

  • How many new patients with MND were seen by the dietetic service in each of the last three years, and where were they seen?
Year Hospital inpatient Hospital outpatient Domiciliary visit Community clinic Other (please state)
2017
2016
2015

 

  • How many review contacts for patients with MND were seen by the dietetic service in each of the last three years, and where were they seen?
Year Hospital inpatient Hospital outpatient Domiciliary visit Community clinic Other (please state)
2017
2016
2015

 

  • How many dietetic patients contacts (new and review) were for oral nutrition support, and how many were for artificial nutrition support, in each of the last three years?
All healthcare settings Hospital settings (in-patients and out-patients) Community settings (clinics and domiciliary visits)
Year Oral nutrition support Artificial nutrition support Oral nutrition support Artificial nutrition support Oral nutrition support Artificial nutrition support
2017
2016
2015

 

Commissioning of MND Nutrition Services

 

20. Where does the funding come from for services for patients with MND in your locality?

21. Which organisations and departments are involved in each stage of the commissioning process of nutritional services for patients with MND in your locality:

  • Strategic planning (assessing needs, reviewing service provisions, deciding priorities)
  • Procuring services (designing services, shaping structure of supply, planning capacity and managing demand)
  • Delivery of services (which department and where are they located?)
  • Monitoring and evaluation (supporting patient choice, managing performance, seeking public and patient views)

22. Where does the funding come from for nutritional services for patients with MND (e.g. nutrition and dietetics service) in your locality? 

 

 

Response: 

The diagnostics and medical management of patient’s with MND is provided regionally through Salford Royal Foundation Trust, please contact them for further information: http://www.srft.nhs.uk/about-us/freedom-of-information/

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