Reference 2019-664

REF:            2019-664

Subject:        Patients diagnosed with genetic haemochromatosis

          

 

Request:

  1. For the period 1st January 2018 to 31st December 2018 (or the most recent 12 month period available), the number of patients diagnosed with genetic haemochromatosis under your care.
  2. For the period 1st January 2018 to 31st December 2018 (or the most recent 12 month period available), the average time in days from first referral from primary care to the patient’s first appointment within your trust.
  3. A copy of the protocol and/or patient pathway applicable to the care of people with genetic haemochromatosis.
  4. The date that your protocol/patient pathway for genetic haemochromatosis was last reviewed or revised.
  5. A copy of your clinical protocol(s) for therapeutic venesection.
  6. The date that your protocol(s) for therapeutic venesection were last reviewed or revised.

 

 

Response:

Please find information attached.

2019-664 – FOI request – Patients diagnosed with genetic haemochromatosis [107 kb] PDF

2316 v3 Having a venesection [21 kb] PDF

Management of Haemochromatosis [305 kb] PDF

Venesection SOP [357 kb] PDF